We exist to educate, support & advocate.

Create a community of support for individuals affected by Neurofibromatosis and their families, through education, patient advocacy, coalitions, raising public awareness, and supporting research and treatments for a cure.

 

About

Find out about our organization, mission, our methods, and the results of our of advocacy.

Learn More →

Take Action

Help us help families, raise awareness by making a donation today.

Find Out How →