CALIFORNIA Events
Huntington Beach Saturday Extravaganza
NF day at the Beach
When: July 12, 2008
Where: Bolsa Chica State Beach
Who: Everyone
Time: 9:00 am to 3:00 pm
Cost: $10.00 parking
More Info: We will try to be close to the water to watch the children play. Look for canopies that say Kiwanis Club and NF event signs. Bolsa Chica State Beach is roughly at Pacific Coast Highway and Warner Avenue in Huntington Beach. Some food will be provided, but feel free to bring food to share. Bring chairs, towels, sunscreen etc. to suit your needs. We will ask the lifeguard station if they can transport those who cannot walk in the sand. Parking is $10.
The fun continues as everyone gathers for dinner
When: July 12, 2008
Where: Family style dinner at Eggroll King
Who: Everyone
Time: 4:00 pm to 5:30 pm
Cost: $7.50 per person [purchase tickets]
More Info: Family style dinner at Eggroll King, 7251 Warner Ave., #F, Huntington Beach (714) 375-9505. Corner of Warner and Goldenwest in the same shopping center as Ross Dress for Less. $7 per person. We will have a raffle at the restaurant. Tickets $1 per chance, sold in $5 strips. (if pre- purchasing dinner tickets and musical tickets special price of $25.00 if purchased before July 1) [purchase tickets]
Have that NF question you have been wanting to ask? Here is your chance!!
“Ask the Doctor” session, with Dr. Vincent Riccardi
When: July 12, 2008
Where: Huntington Beach Public Library and Cultural Center
Who: Everyone
Time: 6:00 pm to 7:00 pm
Cost: no cost
More Info: Dr. Vic Riccardi, a retired M.D. who is an expert in Neurofibromatosis, has agreed to be our guest for a "Ask the Doctor" session, when you can ask the questions about NF in general or advice on seeking help for a specific problem related to NF. The meeting will be held the Huntington Beach Public Library and Cultural Center, 7111 Talbert Avenue, Huntington Beach, CA 92648. Enter on Goldenwest, south of Slater.
“Born to Ride the Waves” musical and silent auction
When: July 12, 2008
Where: Huntington Beach Playhouse
Who: Everyone
Time: 7:00 pm to 7:30 pm Silent Auction and musical starts at 8:00 pm
Cost: $20.00 per person (if pre- purchasing dinner tickets and musical tickets special price of $25.00 if purchased before July 1) [purchase tickets]
More Info: Silent Auction to benefit NF Inc. California and help subsidize this event. Same room as the "Ask the Doctor" meeting. 8 PM "Born to Ride the Waves" is a brand new musical, sure to be entertaining. The musical takes place "Over Labor Day weekend, 1964, the last days of an idyllic California Point Break, confirmed loner and champion surfer Tom Bannick finds his carefree world suddenly challenged by love and a demolition crew. Inspired by Dana Point's colorful past and featuring songs from Surf Story, which the LA Times hailed as "fresh, inspired, elegant, engaging and blissfully unpretentious."
Huntington Beach Playhouse is also in the Library and Cultural Center. Musical tickets are $20 in advance, available through www.nfcalifornia.org website or by sending check to NF Inc. California, P.0. Box 1234, Vacaville, CA 95696. (707) 469-0467.
Purchase tickets
If you have questions regarding this event contact Katie Sperring at secretary@nfcalifornia.org or call 707-469-0467 We look forward to seeing you on July 12!!
Hotel Accomodations
When: July 12, 2008
Where: The “Hotel Huntington Beach”
Who: Everyone
Cost: $89 per night (reserved under “Neurofibromatosis Inc. of California”)
More Info: For those who can stay overnight, we have a small block of rooms reserved under “Neurofibromatosis Inc. of California” at a guaranteed rate of $89 per night for rooms with one king or two double beds. Rollway beds are available at $10 each. Please call (714) 891-0123 and reserve your room early and mention us for the special rate.
The “Hotel Huntington Beach” is located at 7667 Center Ave, Huntington Beach, CA 92647 [map it] near the San Diego (405) freeway at Beach Boulevard exit. It is right across from a charming open air mall with movie theatre, book store and restaurants.
NF "Meat" and Greet BBQ El Nido,CA Merced County
When: Saturday, August 16, 2008
Where: The home of the “Anderson’s”
Who: Everyone
Time: 1:00 pm to 5:00 pm
Cost: A dish to share and a big smile
Directions: [map it]
NFC would like to invite you to our 2nd "Meat" and Greet social barbeque in California on August 16, 2008 from 1:00 pm to 5:00 pm in El Nido, Merced County. It will be a casual afternoon of fun and food, plus a great opportunity to meet others who understand Neurofibromatosis. Please join us! For more information call April at (209) 722-1961 or email: aanderson@ccsurveying.net We look forward to seeing you on the 16th Please RSVP and bring a dessert to share!
Please RSVP and we will share with you what food is already coming. Don’t forget your smile!!!
If you need to reach us the day of the event please call: (707) 469-0467
We have all been waiting for this for a year. Thank you!! April for organizing our 2nd "Meat" and Greet BBQ
If you would like to have a “Meat” and Greet in your area Contact Debbie Bell by calling 707-469-0467 or email dbell@nfcalifornia.org. Our biggest dream is to have several “Meat” and Greet’s all over California. Help us put California on the NF map!!!
E-waste Collection Fundraiser
When: Saturday, August 9, 2008
Sunday, August 10, 2008
Where: Vacaville California location TBA
Who: Everyone
Time: 9:00 am to 3:00 pm both days
Ever wonder what you would do with your unwanted? Televisions, Monitors, Computer Systems, Copy Machines, Fax Machines, Printers, Mp3 players, Scanners, Video Game Consoles, Video Games, Cellular Phones, Household Phones, Stereo Equipment, Miscellaneous Wiring, Cd’s, DVD’s, Computer Components (ie: keyboards, mouse, internet devices etc.) Help us keep these items out of our landfill!
With no cost to you: You can donate your items and support a good cause at the same time
What is E-Waste? Why Recycle?
Electronic waste, commonly referred to as “e-waste” or “tech-junk”, is the fastest growing segment of the waste stream. “Electronic waste” has been defined as equipment that is deemed obsolete and/or at the end of its useful life. Due to rapid advances in technology combined with consumers insatiable appetite for the latest gadget, the statistics are staggering regarding the amount of e-waste that currently exists with more accumulating everyday. Recycling and proper handling of electronic waste is essential for several reasons; electronic equipment contains a multitude of components that exhibit hazardous characteristics, such as lead and arsenic. Universal Waste Management, Inc., handles everything accordingly ensuring the quality of our air and water for future generations. Please help us to “UnWaste Your World”.
Shred-A-Thon and Fundraiser Lunch
When: Saturday, September 27, 2008
Where: El Azteca Restaurant, Vacaville CA
Who: Everyone
Shred-A-thon Time: 9am to 3pm
Shred-A-thon Cost: (3) Boxes professionally and securely shredded for only $10.00
El Azteca Lunch Time: 11am to 2pm
El Azteca Lunch Cost: $10.00 per ticket (buffet style) Mexican food will be served
Directions: [map it]
A special Thank you to ~ El Azteca Restaurant ~ for graciously donating 25% of the evening’s proceeds to NFC which will help NFC assist families with support, education and research. If you are unable to stay please consider placing a take out order and support NFC.
TASTE OF OUTBACK
When: October 2008
October is our month for fundraising breakfast, lunch or dinners. Last year, Outback sponsored lunches in Vacaville, Fremont, and in Torrance. We would like to recruit other Outback restaurants throughout the state to join the fun! Email info@nfcalifornia.org for a proposal to submit to your local Outback restaurant.
We hope to have ten of these Outback dinners this year. In addition to raising funds, these dinners will raise awareness, bringing media attention to this little-known condition. We often wonder why so few people have heard of NF. These dinners will be an effective tool for spreading the word!
If you would like to host a dinner in your home town, help sell tickets, help gather raffle prizes/silent auction items, or volunteer for the day of the fundraiser. Call the NFC office at (707) 469-0467 or email info@nfcalifornia.org.
HIKE ACROSS AMERICA
When: October 2008
←Jodi saving this snapper off the road.
CBS Channel 4, Quad Cities→
Trip miles as of June 18, 2008 1943.10
I don’t know about you but that’s a lot of walking!
Where: Truckee, Foresthill, Auburn, Sacramento, Antioch, Walnut Creek, Oakland, San Francisco, Point Reyes Nat'l SS ETA 11/1
Who: Jodi and Josh
What you can do:
- Raise awareness [email Debbie Bell to help]
- Create a Hug-a-thon if you live close to a Hike Across America town
- Schedule a luncheon or dinner to say “Thank you” and raise NF awareness
Having started in Delaware on March 1st by touching the Atlantic Ocean, Jodi hopes to make it to California to touch the Pacific by early November. We have a VERY, special guests walking American Trail and arriving in California sometime in October. The CALIFORNIA towns they will be walk through are: Truckee, Foresthill, Auburn, Sacramento, Antioch, Walnut Creek, Oakland, San Francisco, Point Reyes Nat'l SS ETA 11/1
We need your help CALIFORNIA!!! We all want awareness here is the tool now we just need to get the word out. If you would like to help with this project please email Debbie Bell at dbell@nfcalifornia.org The "completed hike" media/hype is really important and can be big.
California media will definitely be interested in the story and it would be get to get some big National media stuff too... like the Today Show or Oprah.
Do you live in or close to any of these towns?
Hug-a-thons are great and simple to set up in a public place or at an event/festival. Wouldn’t be great to schedule a luncheons or dinners to say “Thank you” but also we could spread NF awareness and help raise funds for a great cause.
Jodi and Josh should be hitting the Rockies sometime in July and as they near California we will be able to pin down some date. Jodi’s trail journal http://www.trailjournals.com/entry.cfm?id=211481 has a trip odometer, along with reading Jodi’s journal you can see daily miles walked and total miles to date.
Please let’s rally together as a state. Your help will be huge! The hike across America is just the attention grabber that we can use to promote NF. Jodi and Josh have done their job in promoting awareness lets promote NF and the Hike across America and show Jodi and Josh how much we appreciate what they are doing.
[flyer]
NEUROFIBROMATOSIS SYMPOSIUM IN SAN FRANCISO!!
When: Saturday, October 11, 2008
Where: San Francisco
Who: Everyone (kids klub available)
Time: Registration check in begins at 8:30 am Program begins at 9:00 am Program ends at 4:00pm Support Group Meeting following the day’s events
Cost: $25.00 per person; scholarships are available, so please call the office if this fee is prohibitive. Light refreshments will be served. Registration can be done online or by mailing your forms to the NFC office at P.O. Box 1234, Vacaville CA 95696
Special Needs Request Deadline: September 11, 2008.
Registration Deadline: October 1, 2008.
NF, Inc. California will host a symposium. The meeting is open to Neurofibromatosis (NF) patients, family members, and friends as well as the general public.
Living with NF can be overwhelming. Those affected by it are left searching for answers, often without appropriate support. But NF, Inc. California hopes to change that by creating an NF support network for people in the Bay Area.
Speakers and schedules will be announced soon
Please share information about this meeting with your physicians, therapists, teachers, and any others who would be interested in attending. If you have any questions, please contact the office at (707) 469-0467 or info@nfcalifornia.org.
If you need to reach us the day of the event please call: (707) 469-0467
Thank you!!
HOLIDAYS AROUND THE WORLD - December 13, 2008
When: December 13 from 10:00 am to 2:00 pm
Where: Vacaville at the Courtyard by Marriott
Come help us celebrate the holidays with everyone and enjoy activities for all! If you celebrate your holiday in a special way and would like to share it at this event, let us know. If you are a teenager, we invite you to come to our Holidays Around the World. You can participate in all of the activities, or you can be a mentor to our younger kids as they decorate cookies, make fun crafts and eat lots of delicious food! Siblings and friends are always welcome. Please RSVP so we can make sure we have plenty of crafts for everyone. For more information about this event or to RSVP call Debbie Bell at 707-469-0467 or email dbell@nfcalifornia.org.
SEE'S CANDY FUNDRAISER
See’s candy is a great gift for any occasion. See’s has been in business since 1921, making delicious candies to tempt every taste. Whether they like candy bars in milk or dark chocolate, with or without nuts, we will have them. We will also have the peanut brittle and much more. Don’t know what to choose? Choose a gift certificate! It is the gift that always fits, is always the right color and is always appreciated.
To sell locally, contact Melanie at info@nfcalifornia.org or call 707-469-0467 to make arrangements to pick up your candy and/or gift certificates.
There are 15 local pick up stations in California. To be able to sell candy in your area, contact Melanie at info@nfcalifornia.org and we will provide you with more information to get you selling.
Pick up stations:
| Anaheim |
Reseda |
San Diego |
Stockton |
| City of Industry |
Rancho Cordova |
San Jose |
Sunnyvale |
| Clovis/Fresno |
Redwood City |
San Leandro |
Torrance |
| Petaluma |
Sacramento/Capital |
South San Francisco |
Do you live to far away to sell locally? Maybe you are to far away from the local pickup stations? You can still help NFC by pre selling gift certificates. [Print this form] and pre sale as many gift certificates as you like. When you are done selling contact Melanie at info@nfcalifornia.org or call 707-469-0467 tell us how many gift certificates you will need, then mail us your checks and we will be able to send your certificate(s) right to your mailing address. Gift certificates are a great item to keep on hand to say ”Thank you” to someone special. Each gift certificate sells for $14.10 for a one pound denomination. NFC profits 27% of the sales. No expirations dates for redemption.
NFC WALK FUNDRAISER - March 21, 2009
The 4th annual "NF Steps" walk was a great event - with a larger crowd and more essential funds raised. To see some of the day's fun, check out the photos!
NFC walk video
Photos: http://www.shutterfly.com/pro/Moffett/NFCalif
Photos: http://www.shutterfly.com/progal/gallery.jsp?gid=768a5498ce7da6f8d8e9
Slide show: NF Run Walk 2008 by aanderson
Committees are now being formed for NF Steps 2009. If you are interested in volunteering please send an email to events@nfcalifornia.org