Great News! 16 Million for NF Research! |
| NF, Inc. Network Apr 19, 2011 |
| NF, Inc. Network is pleased to announce that Congress has appropriated $16 million through the Department of Defense’s Army’s NF Research Program for fiscal year 2011. [full story...] |
Pre-Valentines ~ Murder Mystery Dinner ~ Vacaville, CA |
| Debbie Bell Jan 23, 2011 |
| Pre-Valentines ~ Murder Mystery Dinner at the Tonylou Awards ~ Vacaville, CA [full story...] |
Sample letter to your Representative in the House |
| NFC Mar 14, 2010 |
| Sample letter to your Representative in the House [full story...] |
Mush4NF follow Tom Lesatz in the Iditarod |
| National NF Inc. Mar 06, 2010 |
| Our Mush4NF Event is being held Saturday, March 6, 2010 in Villa Park, IL. It will be a celebration of the accomplishments of an extraordinary young man named Tom Lesatz. [full story...] |
Gillian Anderson Auction benefits NF, Inc |
| National NF Inc. Feb 28, 2010 |
| Gillian Anderson Auction. Actress Gillian Anderson, known for her roles in X-Files, Bleak House, Last King of Scotland and other stage and screen projects, is again offering items for auctioning to benefit NF, Inc. [full story...] |
Researchers Discover New Way to Kill Pediatric Brain Tumors |
| National NF Inc. Feb 09, 2010 |
| Researchers at Washington University School of Medicine in St. Louis have shown once again that "ready, fire, aim," nonsensical though it may sound, can be an essential approach to research. [full story...] |
Sample wording for personal story |
| NFC Feb 01, 2010 |
| We'll be talking to your representatives and senators and one of the things that makes the most impact is a personal story and request for this funding from their constituents. [full story...] |
UCLA clinical trial info on NF1 |
| Carrie E Bearden, PhD, University of California, Los Angeles Jan 30, 2010 |
| Announcement from UCLA: Professor Alcino Silva at UCLA announces a clinical trial to establish the safety Lovastatin on humans with NF1 in hopes that it could be a potential treatment for cognitive deficits associated with NF1. [full story...] |
NF Consortium |
| NF,Inc. National Jan 05, 2010 |
| The NF Consortium is dedicated to conducting clinical trials. [full story...] |
Understanding NF1 video |
| NFC Jan 01, 2010 |
| A medical resource about Neurofibromatosis 1 for parents, patients and providers [full story...] |
October 2008 Symposium |
| NFC Oct 08, 2008 |
| October 2008 Symposium [full story...] |