Annual Huntington Beach Day
Jul
15
9:00 am09:00

Annual Huntington Beach Day

Join us for a relaxing family style picnic day at Bolsa Chica State Beach! We will have canopies from 9 a.m. to 1 p.m., but stay longer if you want to!

We will be grilling hot dogs, hamburgers and veggies. Please bring a side dish or snack to share.  We will meet close to lifeguard stand #24 at Bolsa Chica State Beach in Huntington Beach.  Don't forget your towel, beach chair and sunscreen!  

The event is free, but parking is $15 or $20 because it is a State Park.

Please R.S.V.P. so we have the right amount of food.

 


NF1 Stanford Symposium
Feb
4
10:00 am10:00

NF1 Stanford Symposium

  • Lucile Packard Children's Hospital

Join us for a free educational event.  We have a great panel of physicians experienced in Neurofibromatosis care for adults and children.  Invite your family, friends, doctors, teachers, etc. [more info]

NF California's Holiday Charity Boutique
Dec
3
1:00 pm13:00

NF California's Holiday Charity Boutique

Please join us for crafts and cookies at a home-style holiday craft boutique. Individuals with NF and their family members are encouraged to promote their crafts at our boutique. We will have holiday decor, year around home decor, tote bags, tee shirts, jewelry, hair bows and more. . Some NF Logo wear will also be available.  Long distance purchases and donations can be arranged.   Proceeds from craft items sold will be benefit participating crafters with NF as well as NF California, 

Contact info below. 

Saturday December 3, 2016 from 1 p.m. to 4 p.m.

19551 Helena Circle, Huntington Beach, CA 92646 (follow hot pink arrow signs from Magnolia and Yorktown).  Call (714) 293-4035 if you need more specific directions or information.

Long distance purchases and donations can be arranged.  

Email questions to katie.sperring@nfcalifornia.org

[printable flyer]      [R.S.V.P.]

 

 

Annual Huntington Beach Day BBQ
Jul
16
9:00 am09:00

Annual Huntington Beach Day BBQ

Join us for a relaxing family style picnic day at Bolsa Chica State Beach! We will have canopies from 9 a.m. to 1 p.m., but stay longer if you want to!

We will be grilling hot dogs, hamburgers and veggies. Please bring a side dish or snack to share.  We will meet close to lifeguard stand #24 at Bolsa Chica State Beach in Huntington Beach.  Don't forget your towel, beach chair and sunscreen!  

The event is free, but parking is $15 or $20 because it is a State Park.

[RSVP]

Boutique in a Box
Jun
1
Sep 12

Boutique in a Box

Boutique in a Box:  If you are interested selling these handmade items, we will pack and send you a box of items that sound most interesting to you.  If you are participating in Great Steps4NF and items sold can be added to your team totals.  [more info]

"Help Needed" ~ Volunteer for NFC
Jun
1
May 31

"Help Needed" ~ Volunteer for NFC

We are looking for volunteers all year long.  If these were paid positions, we would be running classified ad!  Since we are an all-volunteer organization, we will simply beg (and plead)! We need a few more people willing to volunteer on a long-term basis.   [more info]

Great Steps4NF
May
14
7:00 am07:00

Great Steps4NF

  • Pena Adobe Park

Join us for a day of fun.  Engage your friends!  A team is an excellent source of inspiration and support, and in turn, results in more effective fundraising!

For detailed information about the day visit www.greatsteps4NF.org

Ask the Doctor - San Jose
Feb
27
1:00 pm13:00

Ask the Doctor - San Jose

Take advantage of this free opportunity to learn more about Neurofibromatosis from doctors and specialists at Santa Clara Valley Medical Center.  Participating doctors include:

Dr. Robert Wallerstein Chief, Silicon Valley Genetics Center;

Dr. John Sum, Chief, Pediatric Neurology, Santa Clara Valley Medical Center;

Dr. Meena Sukamaran, Developmental Pediatrition, KidScope Assessment Center for Developmental and Behavioral Health;

Dr. Vincent Riccardi, Retired M.D., Genetics, Internal Medicine, NF Specialist, Volunteer Medical Director, NF California.

 There will be brief introductions by each participant and extensive Q&A session.  Light refreshments will be served.  Topics may not be suitable for children; there is no childcare available.

Santa Clara Valley Medical Center

751 S. Bascom Ave

San Jose, CA 95128

Genetics Services Basement Conference Room B160

Free parking in the Patient Parking garage

 

[R.S.V.P.]

NF California Annual Holiday Potluck
Dec
13
2:00 pm14:00

NF California Annual Holiday Potluck

You are invited to join the Roseville Support Group of NF California for our annual holiday get-together.  It will be a potluck at the Burkhalter's home in Roseville.  Sunday, December 13 from 2 p.m. to 4 p.m.  Bring a yummy dish to share!

[R.S.V.P.]

Ask the Doctor Meeting - Beverly Hills
Oct
24
11:30 am11:30

Ask the Doctor Meeting - Beverly Hills

Join us for a delicious lunch with presentation by Dr. Andre Panossian, Board Certified Plastic and Reconstructive Surgeon, who treats children and adults. There will be a Q&A session following Dr. Panossian's presentation. Dr. Vic Riccardi, Board Certified in Genetics and Internal Medicine will also be available for Q&A session on Neurofibromatosis.  

Lunch and parking are free, thanks to  Dr. Panossian.  Please R.S.V.P. early to help us plan!

[Flyer]     [R.S.V.P.]

5th Annual NF Hope Concert ~ Las Vegas
Oct
18
1:00 pm13:00

5th Annual NF Hope Concert ~ Las Vegas

This year marks the 5th for the NF Hope Concert.  So, it is going to be an incredible afternoon of entertainment! Artists already confirmed include Clint Holmes, Human Nature, Bob Anderson and a few surprises.

NF Chat at Mountain Mike's Pizza - Fremont
Aug
18
5:30 pm17:30

NF Chat at Mountain Mike's Pizza - Fremont

Take time out of your busy schedule to meet others in the NF Community.  We want to see who lives within a reasonable distance to Fremont so we can plan future events in the area.  Please RSVP so we know how much space to reserve.

Printable Flyer

Mountain Mike's Pizza  3952 Washington Blvd   Fremont CA  510-490-4007

Motion Tribe Dance Performance - NFC Fundraiser - Irvine
Aug
15
8:00 pm20:00

Motion Tribe Dance Performance - NFC Fundraiser - Irvine

Motion Tribe Dance Company is performing the original pieces choreographed by the late Marie de la Palme Mulroy.  Marie was a supporter of NF California and Motion Tribe will make a generous $10 donation for each ticket sold through NF California.  Please contact Katie Mulroy Sperring to arrange for ticket sales.  katie.sperring@nfcalifornia or (714) 293-4035.

Huntington Beach Day
Jul
18
9:00 am09:00

Huntington Beach Day

  • Huntington Beach Pier Huntington Beach, CA, 92648 United States

Join us for a relaxing picnic day at the beach, enjoying both old and new friends.  We will be grilling hot dogs, hamburgers and veggies.

Ani's Art4NF ~ California
May
27
9:00 am09:00

Ani's Art4NF ~ California

Ani’s generous donation of  handmade glass gift items allows every dollar you raise to be directly applied towards your Great Steps4NF team totals.

Great Steps4NF
May
16
7:00 am07:00

Great Steps4NF

  • Pena Adobe Park 1 Pena Adobe Road Vacaville CA 94587

Join us for a day of fun. Engage your friends!  A team is an excellent source of inspiration and support, and in turn, results in more effective fundraising. 

Pot Luck BBQ
Apr
25
1:00 pm13:00

Pot Luck BBQ

  • Long Beach, CA

Gather with NF friends and family to snack and support each other. All are encouraged to attend and share their experiences with NF.