Ask the Doctor Meeting at City of Hope - Duarte, CA
Aug
18
1:00 PM13:00

Ask the Doctor Meeting at City of Hope - Duarte, CA

NF California has been searching out facilities and doctors who are willing and able to follow adults patients with NF.  City of Hope doctors are currently following a number of adult NF1 patients and would like to give us the opportunity to learn about their scope of practice and ask questions.  The hospital campus is beautiful and there is plenty grass and a lovely garden so individuals can visit with each other after the meeting, if desired.

[Flyer]    [Waiver]  [R.S.V.P.]

 

 

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NF Conference and Social Event - Santa Monica
Jul
14
7:30 AM07:30

NF Conference and Social Event - Santa Monica

Plastic and reconstructive surgeon Andre Panossian, M.D,. is hosting a special NF Surgery Conference to give information on surgical options for NF.  His surgery talk will include electrodessication of the dermal neurofibromas, or  "bumps" that show on the skin.  There will be a patient panel of people who have had surgeries and an opportunity to ask the NF patients questions with the doctors out of the room.  More information and other speakers will be shown on the conference website. 

The conference starts at 7:30 a.m. with breakfast,  meeting from  8:30 a.m. to 12:30 p.m. The cost is $20, but includes hotel parking, breakfast and childcare in addition to the conference.  EARLY REGISTRATION IS NECESSARY because space is limited.  In the event code, please enter "NF California" so they know you are part of NF California. https://drpanossian.com/nf-surgery-conference-2018/

After Dr. Panossian's conference, NF California is having a social time in a nearby meeting room with an ocean view after the conference.  It will be perfect because there is parking for the hotel and the room is available to us kindness of Dr. Panossian.  The social time food is ordered for each person, so we must register for the social time as well as the conference. [R.S.V.P. to NF California]

We will have raffle tickets for sale and a drawing at 1:30 p.m. for assorted prizes.

 

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Dec
2
1:00 PM13:00

NF California Holiday Boutique - Huntington Beach

Our annual holiday boutique is a low key, fun way to shop.  We bake cookies and enjoy each other's company while selling mostly handmade items to the public.  This year we will feature the handiwork of Elizabeth, who lives with NF1 and finds joy in making wreaths, table decorations etc. for the holidays.  We will also have dichroic glass pendants made and donated to us by Ani, glass artist  and mother of NF1 young adult.  For the little girls in your life, we have handmade hair bows donated by Katy, whose daughter has NF1.

In addition, we are also fortunate to have several community members .sewing table runners, tote bags, purses etc. for our boutique.  This year we will have a special clearance section of assorted manufactured items to keep our home-based storage space to a minimum.

If you are interested in supporting the boutique, but live too far away, please contact Katie Sperring at (714) 293-4035 and we will email or text pictures the day of the boutique and see if anything interests you.

 If you can join us, please click on [R.S.V.P.] link or call Katie  Sperring at (714) 293-4035.

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Annual Huntington Beach Day
Jul
15
9:00 AM09:00

Annual Huntington Beach Day

Join us for a relaxing family style picnic day at Bolsa Chica State Beach! We will have canopies from 9 a.m. to 1 p.m., but stay longer if you want to!

We will be grilling hot dogs, hamburgers and veggies. Please bring a side dish or snack to share.  We will meet close to lifeguard stand #24 at Bolsa Chica State Beach in Huntington Beach.  Don't forget your towel, beach chair and sunscreen!  

The event is free, but parking is $15 or $20 because it is a State Park.

Please R.S.V.P. so we have the right amount of food.

 

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NF California's Holiday Charity Boutique
Dec
3
1:00 PM13:00

NF California's Holiday Charity Boutique

Please join us for crafts and cookies at a home-style holiday craft boutique. Individuals with NF and their family members are encouraged to promote their crafts at our boutique. We will have holiday decor, year around home decor, tote bags, tee shirts, jewelry, hair bows and more. . Some NF Logo wear will also be available.  Long distance purchases and donations can be arranged.   Proceeds from craft items sold will be benefit participating crafters with NF as well as NF California, 

Contact info below. 

Saturday December 3, 2016 from 1 p.m. to 4 p.m.

19551 Helena Circle, Huntington Beach, CA 92646 (follow hot pink arrow signs from Magnolia and Yorktown).  Call (714) 293-4035 if you need more specific directions or information.

Long distance purchases and donations can be arranged.  

Email questions to katie.sperring@nfcalifornia.org

[printable flyer]      [R.S.V.P.]

 

 

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Annual Huntington Beach Day BBQ
Jul
16
9:00 AM09:00

Annual Huntington Beach Day BBQ

Join us for a relaxing family style picnic day at Bolsa Chica State Beach! We will have canopies from 9 a.m. to 1 p.m., but stay longer if you want to!

We will be grilling hot dogs, hamburgers and veggies. Please bring a side dish or snack to share.  We will meet close to lifeguard stand #24 at Bolsa Chica State Beach in Huntington Beach.  Don't forget your towel, beach chair and sunscreen!  

The event is free, but parking is $15 or $20 because it is a State Park.

[RSVP]

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Boutique in a Box
Jun
1
to Sep 12

Boutique in a Box

Boutique in a Box:  If you are interested selling these handmade items, we will pack and send you a box of items that sound most interesting to you.  If you are participating in Great Steps4NF and items sold can be added to your team totals.  [more info]

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Ask the Doctor - San Jose
Feb
27
1:00 PM13:00

Ask the Doctor - San Jose

Take advantage of this free opportunity to learn more about Neurofibromatosis from doctors and specialists at Santa Clara Valley Medical Center.  Participating doctors include:

Dr. Robert Wallerstein Chief, Silicon Valley Genetics Center;

Dr. John Sum, Chief, Pediatric Neurology, Santa Clara Valley Medical Center;

Dr. Meena Sukamaran, Developmental Pediatrition, KidScope Assessment Center for Developmental and Behavioral Health;

Dr. Vincent Riccardi, Retired M.D., Genetics, Internal Medicine, NF Specialist, Volunteer Medical Director, NF California.

 There will be brief introductions by each participant and extensive Q&A session.  Light refreshments will be served.  Topics may not be suitable for children; there is no childcare available.

Santa Clara Valley Medical Center

751 S. Bascom Ave

San Jose, CA 95128

Genetics Services Basement Conference Room B160

Free parking in the Patient Parking garage

 

[R.S.V.P.]

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Ask the Doctor Meeting - Beverly Hills
Oct
24
11:30 AM11:30

Ask the Doctor Meeting - Beverly Hills

Join us for a delicious lunch with presentation by Dr. Andre Panossian, Board Certified Plastic and Reconstructive Surgeon, who treats children and adults. There will be a Q&A session following Dr. Panossian's presentation. Dr. Vic Riccardi, Board Certified in Genetics and Internal Medicine will also be available for Q&A session on Neurofibromatosis.  

Lunch and parking are free, thanks to  Dr. Panossian.  Please R.S.V.P. early to help us plan!

[Flyer]     [R.S.V.P.]

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Motion Tribe Dance Performance - NFC Fundraiser - Irvine
Aug
15
8:00 PM20:00

Motion Tribe Dance Performance - NFC Fundraiser - Irvine

Motion Tribe Dance Company is performing the original pieces choreographed by the late Marie de la Palme Mulroy.  Marie was a supporter of NF California and Motion Tribe will make a generous $10 donation for each ticket sold through NF California.  Please contact Katie Mulroy Sperring to arrange for ticket sales.  katie.sperring@nfcalifornia or (714) 293-4035.

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