Annual Huntington Beach Day
Jul
15
9:00am 9:00am

Annual Huntington Beach Day

Join us for a relaxing family style picnic day at Bolsa Chica State Beach! We will have canopies from 9 a.m. to 1 p.m., but stay longer if you want to!

We will be grilling hot dogs, hamburgers and veggies. Please bring a side dish or snack to share.  We will meet close to lifeguard stand #24 at Bolsa Chica State Beach in Huntington Beach.  Don't forget your towel, beach chair and sunscreen!  

The event is free, but parking is $15 or $20 because it is a State Park.

Please R.S.V.P. so we have the right amount of food.

 

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NF California's Holiday Charity Boutique
Dec
3
1:00pm 1:00pm

NF California's Holiday Charity Boutique

Please join us for crafts and cookies at a home-style holiday craft boutique. Individuals with NF and their family members are encouraged to promote their crafts at our boutique. We will have holiday decor, year around home decor, tote bags, tee shirts, jewelry, hair bows and more. . Some NF Logo wear will also be available.  Long distance purchases and donations can be arranged.   Proceeds from craft items sold will be benefit participating crafters with NF as well as NF California, 

Contact info below. 

Saturday December 3, 2016 from 1 p.m. to 4 p.m.

19551 Helena Circle, Huntington Beach, CA 92646 (follow hot pink arrow signs from Magnolia and Yorktown).  Call (714) 293-4035 if you need more specific directions or information.

Long distance purchases and donations can be arranged.  

Email questions to katie.sperring@nfcalifornia.org

[printable flyer]      [R.S.V.P.]

 

 

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Annual Huntington Beach Day BBQ
Jul
16
9:00am 9:00am

Annual Huntington Beach Day BBQ

Join us for a relaxing family style picnic day at Bolsa Chica State Beach! We will have canopies from 9 a.m. to 1 p.m., but stay longer if you want to!

We will be grilling hot dogs, hamburgers and veggies. Please bring a side dish or snack to share.  We will meet close to lifeguard stand #24 at Bolsa Chica State Beach in Huntington Beach.  Don't forget your towel, beach chair and sunscreen!  

The event is free, but parking is $15 or $20 because it is a State Park.

[RSVP]

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Boutique in a Box
Jun
1
to Sep 12

Boutique in a Box

Boutique in a Box:  If you are interested selling these handmade items, we will pack and send you a box of items that sound most interesting to you.  If you are participating in Great Steps4NF and items sold can be added to your team totals.  [more info]

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Ask the Doctor - San Jose
Feb
27
1:00pm 1:00pm

Ask the Doctor - San Jose

Take advantage of this free opportunity to learn more about Neurofibromatosis from doctors and specialists at Santa Clara Valley Medical Center.  Participating doctors include:

Dr. Robert Wallerstein Chief, Silicon Valley Genetics Center;

Dr. John Sum, Chief, Pediatric Neurology, Santa Clara Valley Medical Center;

Dr. Meena Sukamaran, Developmental Pediatrition, KidScope Assessment Center for Developmental and Behavioral Health;

Dr. Vincent Riccardi, Retired M.D., Genetics, Internal Medicine, NF Specialist, Volunteer Medical Director, NF California.

 There will be brief introductions by each participant and extensive Q&A session.  Light refreshments will be served.  Topics may not be suitable for children; there is no childcare available.

Santa Clara Valley Medical Center

751 S. Bascom Ave

San Jose, CA 95128

Genetics Services Basement Conference Room B160

Free parking in the Patient Parking garage

 

[R.S.V.P.]

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Ask the Doctor Meeting - Beverly Hills
Oct
24
11:30am11:30am

Ask the Doctor Meeting - Beverly Hills

Join us for a delicious lunch with presentation by Dr. Andre Panossian, Board Certified Plastic and Reconstructive Surgeon, who treats children and adults. There will be a Q&A session following Dr. Panossian's presentation. Dr. Vic Riccardi, Board Certified in Genetics and Internal Medicine will also be available for Q&A session on Neurofibromatosis.  

Lunch and parking are free, thanks to  Dr. Panossian.  Please R.S.V.P. early to help us plan!

[Flyer]     [R.S.V.P.]

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Motion Tribe Dance Performance - NFC Fundraiser - Irvine
Aug
15
8:00pm 8:00pm

Motion Tribe Dance Performance - NFC Fundraiser - Irvine

Motion Tribe Dance Company is performing the original pieces choreographed by the late Marie de la Palme Mulroy.  Marie was a supporter of NF California and Motion Tribe will make a generous $10 donation for each ticket sold through NF California.  Please contact Katie Mulroy Sperring to arrange for ticket sales.  katie.sperring@nfcalifornia or (714) 293-4035.

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