WHO WE ARE
We are individuals and families whose lives have been impacted by Neurofibromatosis. We have come together out of our personal need for information and support. Neurofibromatosis Inc. California is a non profit organization founded in February 2004, providing medical symposiums, educational meetings, family support groups as well as many other key needs for California’s medical and healthcare professionals, NF patients and their families. Meetings are held throughout California. Our focus is also to be involved in advocacy groups and provide support for NF research.
We exist to support, educate and advocate. The NF diagnosis brings so many questions. Our Goal is to Educate, Uplift and Advocate.
Create a community of support for individuals affected by Neurofibromatosis and their families, through education, patient advocacy, coalitions, raising public awareness, and supporting research and treatments for a cure.