• Summer Mini Series: Research & Resources

    Brewing Company Co 5500 Weber Road, Vacaville, United States

    Saturday, May 17, 2025 Brewing Company Co 5500 Weber Road Vacaville CA 95687 The event is free, but RSVP is required. All ages are welcome. We look forward to seeing you there! If you have questions you can email:  [email protected] | ph: 707-761-4627 Saturday at 9:30 AM to 11:00 am (check in will start at 9:00am) Solano Brewing Company – Our amazing hosts for the Rockin’ Hops Music Festival (3 years running!) We’ll kick off the day with a mini-session on NF research, featuring local doctors sharing the latest breakthroughs happening right here in California. This is a rare opportunity to learn directly from those involved in clinical studies—and get your questions answered. Ask the Doctor: What You’ve Always Wanted to Know Should I or my child participate in a research study? What do PH1, PH2, and PH3 mean in clinical trials? Do I have to travel to take part? Get clarity. Get informed. Get involved. Stick Around for Live Music! After the session, stay a little longer and enjoy the first band of the day—let’s show Solano Brewing Company how much we appreciate their continued support.

  • Rockin Hops Music Festival 2025

    Solano Brewing Co 5500 Weber Road, Vacaville, CA, United States

    Lots of great bands, raffle and silents auction items. 9 bands lined up over 18 hours of music.

  • Rockin Hops Music Festival 2025

    Solano Brewing Co 5500 Weber Road, Vacaville, CA, United States

    Lots of great bands, raffle and silents auction items. 9 bands lined up over 18 hours of music.

  • Got Sneakers Fundraiser

    The “GotSneakers” fundraiser will last all year, and we would love for you to get involved. The program helps to reuse and recycle sneakers, in addition to raising awareness for Neurofibromatosis.

  • Volunteers Needed

    In 2024, we proudly celebrated our 20-year anniversary, a testament to the unwavering dedication of our board members and volunteers— who have passionately volunteered for NF California. Come be a part of something transformative!

  • Huntington Beach Day

    Bolsa Chica State Beach 17851 Pacific Coast Highway, Huntington Beach, CA, United States

    Join us for a relaxing family style picnic day at Bolsa Chica State Beach! Don't forget your towel, beach chair, sunglasses and sunscreen!

  • Huntington Beach Day

    Bolsa Chica State Beach 17851 Pacific Coast Highway, Huntington Beach, CA, United States

    Join us for a relaxing family style picnic day at Bolsa Chica State Beach! Don't forget your towel, beach chair, sunglasses and sunscreen!

  • NF Family Day and Mini Symposium

    California State University, Sacramento - Folsom Hall 7667 Folsom Blvd, Sacramento, United States

    Join us at California State University, Sacramento for “Ask the Doctors”, an educational event designed for patients, families, educators, and caregivers affected by Neurofibromatosis (NF). Hear directly from experts in genetics, dermatology, communication, and hearing, and connect with others who understand your journey. Hosted by CSU Sacramento’s Department of Communication Sciences and Disorders in partnership with Neurofibromatosis California, this program will offer insights, resources, and an opportunity to build community and support. Schedule of Events 9:45 AM – Registration in Folsom Hall Lobby 10:00 AM – Welcome 10:05 AM – Skin Issues 11:00 AM – Cognitive Communication 11:45 AM – Networking Lunch 12:45 PM – Genetics 1:30 PM – Audiology & Auditory Processing 2:15 PM – Communication Skills 3:00 PM – Closing Remarks Meet the Speakers Heather Thompson, PhD CCC-SLP – Speech-Language Pathologist Professor Maija Kiuru, MD, PhD – Clinical Dermatology and Pathology Professor Lisa D’Angelo, PhD CCC-SLP – Speech-Language Pathologist Associate Professor Suma Shankar, MD – Medical Geneticist Raymund Madayag, B.S – Audiology Doctoral Student DATE: Saturday, August 30, 2025 LOCATION: California State University, Sacramento – Folsom Hall 7667 Folsom Blvd, Sacramento, CA 95819 Reserve Your Spot Today Don’t miss this chance to learn, ask questions, and connect with […]

  • Cornhole for NF

    Solano Brewing Co 5500 Weber Road, Vacaville, CA, United States

    Join us at Solano Brewing Co for some Cornhole fun!