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  • NF Family Day and Mini Symposium

    California State University, Sacramento - Folsom Hall 7667 Folsom Blvd, Sacramento, United States

    Join us at California State University, Sacramento for “Ask the Doctors”, an educational event designed for patients, families, educators, and caregivers affected by Neurofibromatosis (NF). Hear directly from experts in genetics, dermatology, communication, and hearing, and connect with others who understand your journey. Hosted by CSU Sacramento’s Department of Communication Sciences and Disorders in partnership with Neurofibromatosis California, this program will offer insights, resources, and an opportunity to build community and support. Schedule of Events 9:45 AM – Registration in Folsom Hall Lobby 10:00 AM – Welcome 10:05 AM – Skin Issues 11:00 AM – Cognitive Communication 11:45 AM – Networking Lunch 12:45 PM – Genetics 1:30 PM – Audiology & Auditory Processing 2:15 PM – Communication Skills 3:00 PM – Closing Remarks Meet the Speakers Heather Thompson, PhD CCC-SLP – Speech-Language Pathologist Professor Maija Kiuru, MD, PhD – Clinical Dermatology and Pathology Professor Lisa D’Angelo, PhD CCC-SLP – Speech-Language Pathologist Associate Professor Suma Shankar, MD – Medical Geneticist Raymund Madayag, B.S – Audiology Doctoral Student DATE: Saturday, August 30, 2025 LOCATION: California State University, Sacramento – Folsom Hall 7667 Folsom Blvd, Sacramento, CA 95819 Reserve Your Spot Today Don’t miss this chance to learn, ask questions, and connect with […]

  • Cornhole for NF

    Solano Brewing Co 5500 Weber Road, Vacaville, CA, United States

    Join us at Solano Brewing Co for some Cornhole fun!

  • Bay Area NF Support Group at Stanford

    Bay Area NF Support Group at Stanford
    Stanford University 453 Quarry Road, Stanford, CA, United States

    Come join us for a discussion about NF and how it has affected your family. With the support of the Lucile Packard Children’s Hospital, this group brings together parents, grandparents, friends, and family of children and teens who have been diagnosed with Neurofibromatosis. The group is open to all families, whether your child is being treated at Kaiser, Stanford, UCSF, or elsewhere in the Bay Area. Under our current schedule we meet three times a year — on the first Saturday in April, August, and December. We will send more information to persons on our mailing list closer to the time of the meeting. If you are not on our mailing list but would like to get on the list to receive meeting information (or if you are on our mailing list but would like to get off), email us at [email protected].

  • NF1 Family Day Mini Symposium

    Featured
    California State University, Sacramento - Folsom Hall 7667 Folsom Blvd, Sacramento, United States

    (Download PDF Of Flyer by Clicking Here)  Reserve Your Spot Today ~ Register by April 15, 2026 This will be a hybrid meeting. The cost is $10.00 per personMain Session (hybrid) Kids Club and Young Adult (in-person only) Join us at California State University, Sacramento for NF1 Family Day Mini Symposium and Kids Club.   an educational event designed for patients, families, educators, and caregivers affected by Neurofibromatosis (NF). Hear directly from experts in Neurofibromatosis and connect with others who understand your journey. Hosted by CSU Sacramento’s Department of Communication Sciences and Disorders in partnership with Neurofibromatosis California, this program will offer insights, resources, and an opportunity to build community and support. This will be a hybrid meeting.  The cost is $10.00 per person DATE:  Saturday, April 25, 2026 Schedule of Events 9:30 am Check- In Begins in Folsom Hall Lobby10:00 am  Welcome RemarksSpeaker #1:  Suma Shankar - Current topics in Genetics and NFSpeaker #2: Vanessa Merker - Patient Engagement in NF Research11:50am-12:30pm LunchSpeaker #3:   Kaity Holden - Executive Functioning in NFSpeaker #4:   Heather Thompson - Communication Supports for Children with NF1: Accessing Referrals and Removing Barriers to Service2:30 pm Closing Remarks Kids Club: (ages 3-17)Attention all parents! Kids Club is available […]

  • Rockin Hops Music Festival 2026

    Solano Brewing Co 5500 Weber Road, Vacaville, CA, United States

    Lots of great bands, raffle and silents auction items. 9 bands lined up over 18 hours of music.