Rockin Hops Music Festival 2025
Lots of great bands, raffle and silents auction items. 9 bands lined up over 18 hours of music.
Lots of great bands, raffle and silents auction items. 9 bands lined up over 18 hours of music.
The “GotSneakers” fundraiser will last all year, and we would love for you to get involved. The program helps to reuse and recycle sneakers, in addition to raising awareness for Neurofibromatosis.
In 2024, we proudly celebrated our 20-year anniversary, a testament to the unwavering dedication of our board members and volunteers— who have passionately volunteered for NF California. Come be a part of something transformative!
Join us for a relaxing family style picnic day at Bolsa Chica State Beach! Don't forget your towel, beach chair, sunglasses and sunscreen!
Join us for a relaxing family style picnic day at Bolsa Chica State Beach! Don't forget your towel, beach chair, sunglasses and sunscreen!
Join us at California State University, Sacramento for “Ask the Doctors”, an educational event designed for patients, families, educators, and caregivers affected by Neurofibromatosis (NF). Hear directly from experts in genetics, dermatology, communication, and hearing, and connect with others who understand your journey. Hosted by CSU Sacramento’s Department of Communication Sciences and Disorders in partnership with Neurofibromatosis California, this program will offer insights, resources, and an opportunity to build community and support. Schedule of Events 9:45 AM – Registration in Folsom Hall Lobby 10:00 AM – Welcome 10:05 AM – Skin Issues 11:00 AM – Cognitive Communication 11:45 AM – Networking Lunch 12:45 PM – Genetics 1:30 PM – Audiology & Auditory Processing 2:15 PM – Communication Skills 3:00 PM – Closing Remarks Meet the Speakers Heather Thompson, PhD CCC-SLP – Speech-Language Pathologist Professor Maija Kiuru, MD, PhD – Clinical Dermatology and Pathology Professor Lisa D’Angelo, PhD CCC-SLP – Speech-Language Pathologist Associate Professor Suma Shankar, MD – Medical Geneticist Raymund Madayag, B.S – Audiology Doctoral Student DATE: Saturday, August 30, 2025 LOCATION: California State University, Sacramento – Folsom Hall 7667 Folsom Blvd, Sacramento, CA 95819 Reserve Your Spot Today Don’t miss this chance to learn, ask questions, and connect with […]
Join us at Solano Brewing Co for some Cornhole fun!
Come join us for a discussion about NF and how it has affected your family. With the support of the Lucile Packard Children’s Hospital, this group brings together parents, grandparents, friends, and family of children and teens who have been diagnosed with Neurofibromatosis. The group is open to all families, whether your child is being treated at Kaiser, Stanford, UCSF, or elsewhere in the Bay Area. Under our current schedule we meet three times a year — on the first Saturday in April, August, and December. We will send more information to persons on our mailing list closer to the time of the meeting. If you are not on our mailing list but would like to get on the list to receive meeting information (or if you are on our mailing list but would like to get off), email us at [email protected].