Got Sneakers Fundraiser
The “GotSneakers” fundraiser will last all year, and we would love for you to get involved. The program helps to reuse and recycle sneakers, in addition to raising awareness for Neurofibromatosis.
10 events found.
Events
-
-
-
Volunteers Needed
In 2024, we proudly celebrated our 20-year anniversary, a testament to the unwavering dedication of our board members and volunteers— who have passionately volunteered for NF California. Come be a part of something transformative!
-
-
Huntington Beach Day
Bolsa Chica State Beach 17851 Pacific Coast Highway, Huntington Beach, CA, United StatesJoin us for a relaxing family style picnic day at Bolsa Chica State Beach! Don't forget your towel, beach chair, sunglasses and sunscreen!
-
Huntington Beach Day
Bolsa Chica State Beach 17851 Pacific Coast Highway, Huntington Beach, CA, United StatesJoin us for a relaxing family style picnic day at Bolsa Chica State Beach! Don't forget your towel, beach chair, sunglasses and sunscreen!
-
-
NF Family Day and Mini Symposium
California State University, Sacramento - Folsom Hall 7667 Folsom Blvd, Sacramento, United StatesJoin us at California State University, Sacramento for “Ask the Doctors”, an educational event designed for patients, families, educators, and caregivers affected by Neurofibromatosis (NF). Hear directly from experts in genetics, dermatology, communication, and hearing, and connect with others who understand your journey. Hosted by CSU Sacramento’s Department of Communication Sciences and Disorders in partnership with Neurofibromatosis California, this program will offer insights, resources, and an opportunity to build community and support. Schedule of Events 9:45 AM – Registration in Folsom Hall Lobby 10:00 AM – Welcome 10:05 AM – Skin Issues 11:00 AM – Cognitive Communication 11:45 AM – Networking Lunch 12:45 PM – Genetics 1:30 PM – Audiology & Auditory Processing 2:15 PM – Communication Skills 3:00 PM – Closing Remarks Meet the Speakers Heather Thompson, PhD CCC-SLP – Speech-Language Pathologist Professor Maija Kiuru, MD, PhD – Clinical Dermatology and Pathology Professor Lisa D’Angelo, PhD CCC-SLP – Speech-Language Pathologist Associate Professor Suma Shankar, MD – Medical Geneticist Raymund Madayag, B.S – Audiology Doctoral Student DATE: Saturday, August 30, 2025 LOCATION: California State University, Sacramento – Folsom Hall 7667 Folsom Blvd, Sacramento, CA 95819 Reserve Your Spot Today Don’t miss this chance to learn, ask questions, and connect with […]
-
-
Cornhole for NF
Solano Brewing Co 5500 Weber Road, Vacaville, CA, United StatesJoin us at Solano Brewing Co for some Cornhole fun!
-
-
-
-
-
Bay Area NF Support Group at Stanford
Stanford University 453 Quarry Road, Stanford, CA, United StatesCome join us for a discussion about NF and how it has affected your family. With the support of the Lucile Packard Children’s Hospital, this group brings together parents, grandparents, friends, and family of children and teens who have been diagnosed with Neurofibromatosis. The group is open to all families, whether your child is being treated at Kaiser, Stanford, UCSF, or elsewhere in the Bay Area. Under our current schedule we meet three times a year — on the first Saturday in April, August, and December. We will send more information to persons on our mailing list closer to the time of the meeting. If you are not on our mailing list but would like to get on the list to receive meeting information (or if you are on our mailing list but would like to get off), email us at [email protected].
-
NF1 Family Day Mini Symposium
FeaturedCalifornia State University, Sacramento - Folsom Hall 7667 Folsom Blvd, Sacramento, United States(Download PDF Of Flyer by Clicking Here) Reserve Your Spot Today ~ Register by April 15, 2026 This will be a hybrid meeting. The cost is $10.00 per personMain Session (hybrid) Kids Club and Young Adult (in-person only) Join us at California State University, Sacramento for NF1 Family Day Mini Symposium and Kids Club. an educational event designed for patients, families, educators, and caregivers affected by Neurofibromatosis (NF). Hear directly from experts in Neurofibromatosis and connect with others who understand your journey. Hosted by CSU Sacramento’s Department of Communication Sciences and Disorders in partnership with Neurofibromatosis California, this program will offer insights, resources, and an opportunity to build community and support. This will be a hybrid meeting. The cost is $10.00 per person DATE: Saturday, April 25, 2026 Schedule of Events 9:30 am Check- In Begins in Folsom Hall Lobby10:00 am Welcome RemarksSpeaker #1: Suma Shankar - Current topics in Genetics and NFSpeaker #2: Vanessa Merker - Patient Engagement in NF Research11:50am-12:30pm LunchSpeaker #3: Kaity Holden - Executive Functioning in NFSpeaker #4: Heather Thompson - Communication Supports for Children with NF1: Accessing Referrals and Removing Barriers to Service2:30 pm Closing Remarks Kids Club: (ages 3-17)Attention all parents! Kids Club is available […]
