NF California

NF California Virtual Meet-Up
2027-08-05, 2027-07-01, 2027-06-03, 2027-05-06, 2027-04-01, 2027-03-04, 2027-02-04, 2027-01-07 and 10 more dates

Bay Area NF Support Group at Stanford
2026-12-05, 2026-08-01, 2026-04-04 | Stanford University, 453 Quarry Road, Stanford, CA, 94304, United States
Come join us for a discussion about NF and how it has affected your family. With the support of the Lucile Packard Children’s Hospital, this group brings together parents, grandparents, friends, and family of children and teens who have been diagnosed with Neurofibromatosis. The group is open to all families, whether your child is being treated at Kaiser, Stanford, UCSF, or elsewhere in the Bay Area.
Under our current schedule we meet three times a year — on the first Saturday in April, August, and December. We will send more information to persons on our mailing list closer to the time of the meeting. If you are not on our mailing list but would like to get on the list to receive meeting information (or if you are on our mailing list but would like to get off), email us at NFsupport@sonic.net.

Huntington Beach Day
2026-07-18 09:00 - 13:00, 2025-07-12 09:00 - 13:00 UTC | Bolsa Chica State Beach, 17851 Pacific Coast Highway, Huntington Beach, CA, 92649, United States
Join us for a relaxing family style picnic day at Bolsa Chica State Beach!

The event is scheduled from 9:00 a.m. to 1 p.m, but all are welcome to stay longer if they wish! (And, early birds are especially welcome to help stake out space and set up a few canopies.)

Lunch will be a BBQ potluck; bring a side dish to share. Hamburgers, hotdogs, grilled vegetables, and water bottles will be provided. We will meet close to lifeguard stand #24 at Bolsa Chica State Beach in Huntington Beach. Don’t forget your towel, beach chair, sunglasses and sunscreen!

The event is free, but parking is approximately $20 because it is a State Park. Check out your local public library for the state park parking voucher.

Please RSVP via this link. This helps us to get an idea of how many NF friends to expect. Those who attend always mention how wonderful it is to spend time together, so we hope that you can join us!

If you have questions you can email Katie: katie.sperring@nfcalifornia.org

RSVP

Rockin Hops Music Festival 2026
2026-05-16 - 2026-05-17 | Solano Brewing Co, 5500 Weber Road, Vacaville, CA, 95687, United States
Rockin’ HopsMusic Festival
Benefiting Neurofibromatosis California
May 16 & 17, 2026

NF1 Family Day Mini Symposium
2026-04-25 10:00 - 14:30 (America/Los_Angeles) | California State University, Sacramento – Folsom Hall, 7667 Folsom Blvd, Sacramento, 95819, United States
(Download PDF Of Flyer by Clicking Here)

Reserve Your Spot Today ~ Register by April 15, 2026
This will be a hybrid meeting. The cost is $10.00 per personMain Session (hybrid) Kids Club and Young Adult (in-person only)
Join us at California State University, Sacramento for NF1 Family Day Mini Symposium and Kids Club. an educational event designed for patients, families, educators, and caregivers affected by Neurofibromatosis (NF). Hear directly from experts in Neurofibromatosis and connect with others who understand your journey.
Hosted by CSU Sacramento’s Department of Communication Sciences and Disorders in partnership with Neurofibromatosis California, this program will offer insights, resources, and an opportunity to build community and support.
This will be a hybrid meeting. The cost is $10.00 per person
DATE: Saturday, April 25, 2026
Schedule of Events
9:30 am Check- In Begins in Folsom Hall Lobby10:00 am Welcome RemarksSpeaker #1: Suma Shankar – Current topics in Genetics and NFSpeaker #2: Vanessa Merker – Patient Engagement in NF Research11:50am-12:30pm LunchSpeaker #3: Kaity Holden – Executive Functioning in NFSpeaker #4: Heather Thompson – Communication Supports for Children with NF1: Accessing Referrals and Removing Barriers to Service2:30 pm Closing Remarks
Kids Club: (ages 3-17)Attention all parents! Kids Club is available for our NF1 Family Day. Kids Club activities will take place indoors at the Maryjane Rees Language, Speech and Hearing Center on the second floor of Folsom Hall. When registering, please let us know how many kids you will be bringing, their ages, and if there are any medical precautions or accommodations they will need to participate in our Kids Club activities.
Young Adult Group: (ages 18-29)
LOCATION:California State University, SacramentoFolsom Hall7667 Folsom Blvd.Sacramento, CA 95819
Reserve Your Spot Today ~ Register by April 15, 2026
PRINTABLE FLYER
Don’t miss this chance to learn, ask questions, and connect with your NF community.

Guest Speakers Include

Suma Prabhu Shankar, M.D., Ph.D.

UC DavisChief, Genomic Medicine Division, Department of Pediatrics
Director of Precision Genomics
Professor, Departments of Pediatrics and Ophthalmology

Vanessa Merker, Ph.D.

Harvard Medical School
Assistant Professor of Neurology
Investigator, Asst Prof (M)
MGBCI Faculty Neuro Med Onc MGPO, Mass General Research Institute

Kaity Holden, MS

Sacramento State
Speech-Language Pathology, Department of Communication Sciences and Disorders graduate, class of 2027

Heather Thompson, Ph.D., CCC-SLP

Sacramento State
Department Chair, CSAD2B Coordinator, Professor
Department of Communication Sciences &
Disorders College of Health & Human Services

Cornhole for NF
2025-09-27 11:00 - 18:00 UTC | Solano Brewing Co, 5500 Weber Road, Vacaville, CA, 95687, United States
Join us at Solano Brewing Co for some Cornhole fun!

NF Family Day and Mini Symposium
2025-08-30 09:45 - 15:00 UTC | California State University, Sacramento – Folsom Hall, 7667 Folsom Blvd, Sacramento, 95819, United States
Join us at California State University, Sacramento for “Ask the Doctors”, an educational event designed for patients, families, educators, and caregivers affected by Neurofibromatosis (NF). Hear directly from experts in genetics, dermatology, communication, and hearing, and connect with others who understand your journey.
Hosted by CSU Sacramento’s Department of Communication Sciences and Disorders in partnership with Neurofibromatosis California, this program will offer insights, resources, and an opportunity to build community and support.
Schedule of Events
9:45 AM – Registration in Folsom Hall Lobby
10:00 AM – Welcome
10:05 AM – Skin Issues
11:00 AM – Cognitive Communication
11:45 AM – Networking Lunch
12:45 PM – Genetics
1:30 PM – Audiology & Auditory Processing
2:15 PM – Communication Skills
3:00 PM – Closing Remarks
Meet the Speakers

Heather Thompson, PhD CCC-SLP – Speech-Language Pathologist Professor
Maija Kiuru, MD, PhD – Clinical Dermatology and Pathology Professor
Lisa D’Angelo, PhD CCC-SLP – Speech-Language Pathologist Associate Professor
Suma Shankar, MD – Medical Geneticist
Raymund Madayag, B.S – Audiology Doctoral Student

DATE: Saturday, August 30, 2025
LOCATION: California State University, Sacramento – Folsom Hall 7667 Folsom Blvd, Sacramento, CA 95819
Reserve Your Spot Today
Don’t miss this chance to learn, ask questions, and connect with your NF community. Register by August 26.
Register Now

Volunteers Needed
2025-06-30
In 2024, we proudly celebrated our 20-year anniversary, a testament to the unwavering dedication of our board members—four working moms, wives, and grandparents who have passionately volunteered for NF California throughout these two decades. Our journey has been one of profound connection and community building, illustrating that by working towards a common goal, we can create lasting relationships and support one another. We warmly invite you to join us in this fulfilling endeavor! Whether you have a specific skill, hobby, or passion you wish to share, we encourage you to reach out via email and let us know what inspires you. It’s through these diverse contributions that we enrich the NF California community and continue to make a meaningful impact together. Contact us: info@nfcalifornia.org | 707-469-0467

﻿Come be a part of something transformative!

Got Sneakers Fundraiser
2025-06-30
The “GotSneakers” fundraiser will last all year, and we would love for you to get involved. The program helps to reuse and recycle sneakers, in addition to raising awareness for Neurofibromatosis.

Participants gather unneeded tennis shoes from anyone and everyone they know. NF California then orders a prepaid shipping bag for participants to use to send the shoes to “Got Sneakers.” The proceeds are donated to NF California.

Contact us to get involved. NF California events@nfcalifornia.org or 707-761-0467

Footwear Guidelines

Request for BAGS
