NF California

NF California Virtual Meet-Up
2026-04-02 | CA

Bay Area NF Support Group at Stanford
2026-04-04 | Stanford University, 453 Quarry Road, Stanford, CA, 94304, United States
Come join us for a discussion about NF and how it has affected your family. With the support of the Lucile Packard Children’s Hospital, this group brings together parents, grandparents, friends, and family of children and teens who have been diagnosed with Neurofibromatosis. The group is open to all families, whether your child is being treated at Kaiser, Stanford, UCSF, or elsewhere in the Bay Area.
Under our current schedule we meet three times a year — on the first Saturday in April, August, and December. We will send more information to persons on our mailing list closer to the time of the meeting. If you are not on our mailing list but would like to get on the list to receive meeting information (or if you are on our mailing list but would like to get off), email us at NFsupport@sonic.net.

NF1 Family Day Mini Symposium
2026-04-25 10:00 - 14:30 (America/Los_Angeles) | California State University, Sacramento – Folsom Hall, 7667 Folsom Blvd, Sacramento, 95819, United States
(Download PDF Of Flyer by Clicking Here)

Reserve Your Spot Today ~ Register by April 15, 2026
This will be a hybrid meeting. The cost is $10.00 per personMain Session (hybrid) Kids Club and Young Adult (in-person only)
Join us at California State University, Sacramento for NF1 Family Day Mini Symposium and Kids Club. an educational event designed for patients, families, educators, and caregivers affected by Neurofibromatosis (NF). Hear directly from experts in Neurofibromatosis and connect with others who understand your journey.
Hosted by CSU Sacramento’s Department of Communication Sciences and Disorders in partnership with Neurofibromatosis California, this program will offer insights, resources, and an opportunity to build community and support.
This will be a hybrid meeting. The cost is $10.00 per person
DATE: Saturday, April 25, 2026
Schedule of Events
9:30 am Check- In Begins in Folsom Hall Lobby10:00 am Welcome RemarksSpeaker #1: Suma Shankar – Current topics in Genetics and NFSpeaker #2: Vanessa Merker – Patient Engagement in NF Research11:50am-12:30pm LunchSpeaker #3: Kaity Holden – Executive Functioning in NFSpeaker #4: Heather Thompson – Communication Supports for Children with NF1: Accessing Referrals and Removing Barriers to Service2:30 pm Closing Remarks
Kids Club: (ages 3-17)Attention all parents! Kids Club is available for our NF1 Family Day. Kids Club activities will take place indoors at the Maryjane Rees Language, Speech and Hearing Center on the second floor of Folsom Hall. When registering, please let us know how many kids you will be bringing, their ages, and if there are any medical precautions or accommodations they will need to participate in our Kids Club activities.
Young Adult Group: (ages 18-29)
LOCATION:California State University, SacramentoFolsom Hall7667 Folsom Blvd.Sacramento, CA 95819
Reserve Your Spot Today ~ Register by April 15, 2026
PRINTABLE FLYER
Don’t miss this chance to learn, ask questions, and connect with your NF community.

Guest Speakers Include

Suma Prabhu Shankar, M.D., Ph.D.

UC DavisChief, Genomic Medicine Division, Department of Pediatrics
Director of Precision Genomics
Professor, Departments of Pediatrics and Ophthalmology

Vanessa Merker, Ph.D.

Harvard Medical School
Assistant Professor of Neurology
Investigator, Asst Prof (M)
MGBCI Faculty Neuro Med Onc MGPO, Mass General Research Institute

Kaity Holden, MS

Sacramento State
Speech-Language Pathology, Department of Communication Sciences and Disorders graduate, class of 2027

Heather Thompson, Ph.D., CCC-SLP

Sacramento State
Department Chair, CSAD2B Coordinator, Professor
Department of Communication Sciences &
Disorders College of Health & Human Services
