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X-WR-CALDESC:Events for NF California
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UID:10000048-1775088000-1775174399@www.nfcalifornia.org
SUMMARY:NF California Virtual Meet-Up
DESCRIPTION:
URL:https://www.nfcalifornia.org/event/nf-california-virtual-meet-up/2026-04-02/
LOCATION:CA
ATTACH;FMTTYPE=image/webp:https://www.nfcalifornia.org/wp-content/uploads/2026/03/Virtual-Meet-UP.webp
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DTSTART;VALUE=DATE:20260404
DTEND;VALUE=DATE:20260405
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UID:10000108-1775260800-1775347199@www.nfcalifornia.org
SUMMARY:Bay Area NF Support Group at Stanford
DESCRIPTION:Come join us for a discussion about NF and how it has affected your family. With the support of the Lucile Packard Children’s Hospital\, this group brings together parents\, grandparents\, friends\, and family of children and teens who have been diagnosed with Neurofibromatosis. The group is open to all families\, whether your child is being treated at Kaiser\, Stanford\, UCSF\, or elsewhere in the Bay Area. \nUnder our current schedule we meet three times a year — on the first Saturday in April\, August\, and December. We will send more information to persons on our mailing list closer to the time of the meeting. If you are not on our mailing list but would like to get on the list to receive meeting information (or if you are on our mailing list but would like to get off)\, email us at NFsupport@sonic.net.
URL:https://www.nfcalifornia.org/event/bay-area-nf-support-group-at-stanford/2026-04-04/
LOCATION:Stanford University\, 453 Quarry Road\, Stanford\, CA\, 94304\, United States
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DTSTART;TZID=America/Los_Angeles:20260425T100000
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UID:10000044-1777111200-1777127400@www.nfcalifornia.org
SUMMARY:NF1 Family Day Mini Symposium
DESCRIPTION:(Download PDF Of Flyer by Clicking Here) \n			\n			\n				\n				\n				\n				\n			\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				  \nReserve Your Spot Today ~ Register by April 15\, 2026\nThis will be a hybrid meeting. The cost is $10.00 per personMain Session (hybrid) Kids Club and Young Adult (in-person only)\nJoin us at California State University\, Sacramento for NF1 Family Day Mini Symposium and Kids Club.   an educational event designed for patients\, families\, educators\, and caregivers affected by Neurofibromatosis (NF). Hear directly from experts in Neurofibromatosis and connect with others who understand your journey. \nHosted by CSU Sacramento’s Department of Communication Sciences and Disorders in partnership with Neurofibromatosis California\, this program will offer insights\, resources\, and an opportunity to build community and support. \nThis will be a hybrid meeting.  The cost is $10.00 per person \nDATE:  Saturday\, April 25\, 2026 \nSchedule of Events \n9:30 am Check- In Begins in Folsom Hall Lobby10:00 am  Welcome RemarksSpeaker #1:  Suma Shankar – Current topics in Genetics and NFSpeaker #2: Vanessa Merker – Patient Engagement in NF Research11:50am-12:30pm LunchSpeaker #3:   Kaity Holden – Executive Functioning in NFSpeaker #4:   Heather Thompson – Communication Supports for Children with NF1: Accessing Referrals and Removing Barriers to Service2:30 pm Closing Remarks \nKids Club: (ages 3-17)Attention all parents! Kids Club is available for our NF1 Family Day. Kids Club activities will take place indoors at the Maryjane Rees Language\, Speech and Hearing Center on the second floor of Folsom Hall. When registering\, please let us know how many kids you will be bringing\, their ages\, and if there are any medical precautions or accommodations they will need to participate in our Kids Club activities. \nYoung Adult Group: (ages 18-29) \nLOCATION:California State University\, SacramentoFolsom Hall7667 Folsom Blvd.Sacramento\, CA 95819 \nReserve Your Spot Today ~ Register by April 15\, 2026 \nPRINTABLE FLYER \nDon’t miss this chance to learn\, ask questions\, and connect with your NF community. \n			\n				\n				\n				\n				\n				Guest Speakers Include\n			\n			\n				\n				\n				\n				\n			\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				\n				\n					Suma Prabhu Shankar\, M.D.\, Ph.D.\n					\n					\nUC DavisChief\, Genomic Medicine Division\, Department of Pediatrics\nDirector of Precision Genomics\nProfessor\, Departments of Pediatrics and Ophthalmology\n\n					\n				\n			\n				\n				\n				\n				\n				\n				\n					Vanessa Merker\, Ph.D.\n					\n					\nHarvard Medical School \nAssistant Professor of Neurology\nInvestigator\, Asst Prof (M)\nMGBCI Faculty Neuro Med Onc MGPO\, Mass General Research Institute\n\n					\n				\n			\n				\n				\n				\n				\n				\n				\n					Kaity Holden\, MS \n					\n					\nSacramento State\nSpeech-Language Pathology\, Department of Communication Sciences and Disorders graduate\, class of 2027\n\n					\n				\n			\n				\n				\n				\n				\n				\n				\n					Heather Thompson\, Ph.D.\, CCC-SLP\n					\n					\nSacramento State\nDepartment Chair\, CSAD2B Coordinator\, Professor\nDepartment of Communication Sciences &\nDisorders College of Health & Human Services
URL:https://www.nfcalifornia.org/event/nf1-family-day-mini-symposium/
LOCATION:California State University\, Sacramento – Folsom Hall\, 7667 Folsom Blvd\, Sacramento\, 95819\, United States
ATTACH;FMTTYPE=image/webp:https://www.nfcalifornia.org/wp-content/uploads/2026/03/Primary_Vertical_3_Color_gld_hnd_hires.webp
ORGANIZER;CN="NF California":MAILTO:dbell@nfcalifornia.org
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